There are days when I have tons of energy and others were getting out of bed seems to physically demanding. I have had to learn how to put blinders on when I walk through my house. I was the type of person who cleaned my house from top to bottom everyday. Now there are days were things just don't get done. I have had to learn to accept that I had to learn that I can only do what I can when I can. Some days I have the energy just not the mental willpower to get things done. Some days just seem more overwhelming than others. I have had to learn how to ask and accept help, something I still struggle with to this day. I was raised that you never ask for help and if you have to then you don't ever look any farther than your own family. I have had to learn that asking for help doesn't mean that the disease has won. I have come to understand that I have to do things differently, I need to understand that I can't expect to be the way I was. It doesn't mean that I have gave in to my disease, it means that I'm not alone in my battle. We don't send one person to fight a war we send the entire army. We all have to learn our limitations we can try to overcome them or improve from them but first we have to know them. Rome wasn't built in a day so as a person with lung disease why do I think I can do it all in a day?
Some days just getting out of the house seems just to much a hassle. When you are on oxygen there is no just running down the street. You have to be aware of where you are going, how long you plan to get there and how much oxygen you have. You always have to make sure you have back up just in case.
There are days were just having to wear the oxygen around the house can be a real pain. The cannula, the tube that blows the oxygen in the nose, will get hung up on stuff all of the time. My kids and dogs are always tripping on mine causing it to rip off of my face and from behind my ears. It's not a pleasant feeling. I get the tubing hooked on things and not realize it until I almost break my neck. Vacuuming can be a pain in the butt, you have to keep your tube and the cord from getting a tangled together. And sucking the tube up in the vacuum isn't that fun either. Carrying laundry baskets can prove to be a challenge all on their own, for one you have to make sure you don't trip and fall over your own cannula. Plus with the way my house is set up my cannula always gets hook around the dog's bowl's which isn't that bad when they aren't full of food and water. Have you ever slammed a door in your own face? I have, my cannula gets stuck under the door and as I walk in or out of the room it slams the door shut.
There are tons of things that keep us down but you can't give in or give up. It's hard I know. I have days were I just don't have the energy but I still make myself get up and do something, it might just be as simple as taking a shower but I did it. I got up I didn't just lay there I did something. Have plans in place for the days you know you are going to be tired if you have days were you have lot going on make sure you have quick fix meals in the freezer. Don't plan to clean the house and go grocery shopping all in one day. Find ways to do things in a easier way, don't feel ashamed to ask for help. Remember to break things down if them seem to overwhelming. Just don't give up. You will feel better about yourself if you do something, anything.
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