I want to use this blog to show people who are struggling with lung disease that it's not the end of their life just a bump in the road. I want show people that they can still get out and do things and have a life they might just have to do things a little different.
"Challenges make life interesting. However, overcoming them is what life meaningful."
~Mark Twain
~Mark Twain
Monday, February 14, 2011
And it starts....
Well, I guess I'll start this by introducing myself, I'm a 30 year old mother of two daughter's. I have been married for 12 years to my loving husband. I live in Colorado and have all of my life, I love it here. I always loved getting out in the mountains, hiking, fishing or just hanging out. Almost 3 years ago I started having trouble my chest felt tight and I would get short of breath easily. My heart felt like would jump right out of my chest you could see my neck pulsate. I went to the doctor think I was coming down with an upper respiratory infection. But all he could find was that my blood pressure was high. He put me on some meditation to help with the problem and wanted me to monitor my blood pressure at home see if he could find a reason or pattern. The med's never really helped and the shortness of breath continued to be a problem I started missing more and more work because I was just so exhausted. When I did make it to work I would have to come in early so that I could recover from the walk into the hospital I worked for. I felt like I was always on the verge of passing out, I could see clearly but there was blackness and star burst on the side of my vision. I started struggling with words I couldn't remember things I was struggling to stay just above water. My hands were dark red, then purplish and towards the end the finger tips were blackish. I continued this way for about three months when I couldn't take it anymore I woke up from a nap and still felt exhausted. My husband became panicked when the entire bottom half of my face had turned blue. We took the kids to my mother's house and dropped them off with her. Then we headed into the emergency department, they checked my oxygen levels they were at 70% and five minutes later they dropped to 40%. They quickly put me on oxygen and rushed us to a room. Then came the whirlwind being rushed from one test to another. Then nothing...we sat in that room for hours. Every now and then they would come in a turn the oxygen down. Then they came in and turned it off and with minutes I was back were I started. They decided to admit me while they tried to figure out what was going on.... they thought it was asthma and work it's self out with the oxygen. Two days later I was released with no really answers they still didn't know what was going on so they sent me home with the oxygen and had me follow up with my regular doctor. Months went by they ran every test they could think of they tried several things but nothing work. After months of testing and trying they sent me to the University Hospital were they finally got me stabilize. They still don't really know what kind of lung disease I have how or why I got or what to do about it. I did a lot research when I first became ill and most sites I found said that people who waited as long as I did to get treatment were put in ICU and most of those didn't ever make it out of there. That is when I decided I wouldn't lay down and let this kill me... I would keep fighting not just by going to the doctor and working with the treatments but I would find ways to get out and enjoy the things I had enjoyed before. Not everyday is a good day some days I struggle to do the smallest amount. But I continue to push forward because I don't want to go to my death bed with tons of regrets I know we all must have some and there are alot of those that because of my health I never be able to do but why not make the most out the ones I can do. Well, guess that's a good start for today.
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